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Friday, 29 April 2016

Tom's Week

So Tom had a good week this week.

On Wednesday he was in his new class for swimming.  I didn't go as it was too late for me and I was too tired.  Matt came home very proud.  Apparently Tom was the fastest for all strokes bar one and looked completely comfortable in the class.  Well done Tom, although we did tell him to slow down as he can't go up another class, he's now swimming past his usual bedtime!

On Thursday he came home with a mini certificate from Ms Middleton for 'Star Writer'!  Now writing is his weakest subject so we were overjoyed.  We think it probably improved because of the scrapbook he wrote whilst on holiday - he formulated and wrote all of it himself, and you can see in it that his writing got better as he went along.  He wrote a lot and he wrote every single day.  If we hadn't had taken him out of school to go to Japan, he wouldn't have done it and his writing would still be rubbish.  And we are irresponsible for doing so, oh how I wish I could have a sensible conversation with Nicky Morgan about it!!!!!  
See - a trip to Japan makes all the difference!

Anyway we are very proud of our little man this week.

And just to confirm everything I've just said - we got a handwritten note from Ms Middleton on Friday saying how well he is doing.

Sunday, 24 April 2016

Quiet Weekend

Parade
So this weekend was only going to be a quiet weekend, not quite ready to paint the town red yet!

Saturday is normally football, but Tom had been asked if he wanted to be part of the Colour Parade in the St George's Day Parade, to which he said yes, so that meant he had to forfeit football and go to Church instead to learn what he had to do.  Matt took him across, whilst I rested up.  He came home very excited about the whole thing - they get to go through a 'secret door' in church and have reserved seats etc, etc.

As it was a nice (but cold day), we decided to go for a drive up to Hawes to enjoy the countryside and  have lunch.  We went to the Penny Garth Cafe (where I had a huge chip butty just 2 weeks ago on our arrival back from Japan).  This time it was soup and a roll - and I couldn't manage all of that!

We went for a short walk around the village centre and then came back home.  I had a lie down (it's exhausting sitting in a car!) whilst the boys played football.  The Shults' at some point then delivered a Keelham food parcel to the front door - they didn't stop, but they delivered a big pie, 2 lots of soup, veggies and fruit - so so lovely and means no cooking tomorrow - yahoo!

We then had dinner (pasta and pork) in front of Dad's Army, Matt then went to Settle to watch some Taiko Drumming whilst I lay on the sofa watching programmes about food.

Coming out of church
Sunday - today was the St George's Day Parade.  After a week of sunshine, today it was cloudy and at 10am when the parade started, it began to rain (oh joy!).   Tom took his place in the parade - directly behind the Beaver's flag, they walked around the park and in to St Mary's Church, we followed behind.  We then had to sit through a children's church service.  The vicar was a little disorganised and it seemed to be taking ages.  I looked at the time and found it was 11, Matt thought the service would go on to 12!  My body was screaming at me that there was no way I could stay on the pews all that time, so I decided to leave and sneaked through the door into the fresh air and back home.  There I rested for an hour until Matt and Tom returned.

We then had lunch at home - a very lovely thick soup from the Keelham food parcel before heading out to Kendal to get Tom some new school shoes.  I polished his school shoes yesterday and discovered that they were completely trashed - whole panels were coming apart, threads were everywhere, Velcro was coming away etc etc.  I had to cut a lot of threads off and superglue the things back together again.  Definitely time to get him some more (a pain that it is the term before the summer holidays!)

Week 2
We got the shoes and then decided to head to Beetham Nurseries for tea and a bun and to see if we could get some house plants for the lounge.  We had tea and a bun - the restaurant looked really nice actually, will have to return one day when I have an appetite, but we didn't find any house plants.

We came home and I had a rest followed by a bath.

I am still feeling very tired after the most minuscule things, and today I seem to have a pain in the side of my tummy - not near the scar, but i guess part of the operation area.  It is making everything I do just a little more painful than I would like.  Hoping it will pass.

Oh and I've decided to put up a weekly pic of my scar so here it is (sorry, but this is my blog after all!).  Looks much better than last week and some bits of it are almost completely healed.

Saturday, 23 April 2016

Recovery

So I have now been out of hospital almost the same amount of time I was in hospital, and boy has this week gone faster?!  I am still relishing every second of not being in hospital and the fact I can sit and stand without being in intense pain, although I am drinking a lot of diet coke as every morning I seem to wake up with a headache and get worried it might develop further.

I can't get my head around how weak I have become though.  I have gone from walking 10 miles a day around Japan with no problem what so ever, to having trouble walking to the Community Centre and back and having to rest up in bed for about 3 hours afterwards to recover.  I had NO IDEA your body could pack up on you so quickly!  Everyone keeps telling me that I've had a big operation, that my body is in trauma and I need to listen to it etc etc.  I am, I have slowed down, I have spent countless number of hours in bed, but it doesn't stop me being amazed at how rubbish my body has become!!!!!

I think the menopause has started too, I am waking up in the middle of the night soaking with sweat.  Matt's already had to change the bed sheets, and I'm having to have showers in the morning as apparently "I honk!".  It's difficult to know for me whether I am having the sweats as reaction to the operation / trauma or whether it is the menopause.  I have always been susceptible to sweatiness and have had the odd night sweat anyway.  I think I will see how it goes and if it gets unbearable then get in touch with the Dr.  I did ask at the hospital about menopause, but they said they didn't have any information - I guess most of their patients have already been through it.

I'm also having trouble sleeping - I'm not that physically active during the day, so even though I am very tired when I go to bed, I am awake again around 2am (cold and sweaty) and find it very difficult to get back to sleep again, if I do then I'm awake before 6am.  I'm hoping better sleep will come once I'm a bit more active.

My appetite is appalling as well.  When I came out of hospital, it actually hurt to eat, I could feel food / drink going down my stomach in a way I have never done so before.  It literally took my breath away, but I didn't say anything to anyone at the hospital because I didn't want them to find a reason to keep me there.  As the week has gone on that pain has more or less gone and I'm even able to gulp drinks to an extent now.  However, food is not exciting me at all, not even my favourite snacks are exciting me.  I sit down to dinner to a sparrow's portion and struggle to get it in.  I think Tom and I are eating about the same at the moment.  My weight has plummeted so much that for the first time ever, I am now lighter than Matt!  I'm hoping that at some stage my appetite will get better, it is very strange not having an appetite - my life has always revolved around food!

Oh, one of the first things I did on the Sunday when I got home was ask Matt exactly what Nick Wood said to him on Monday after the operation.  Nick Wood did come to visit me on the Monday after the op, but I was so drugged up that I can't remember a thing he told me.  I obviously had plenty of opportunities to ask him later on during the week, but all I wanted to focus on was getting out of that hospital, not anything else.

So, apparently when he opened me up he found hundreds of cysts.  He took out my womb, cervix, ovaries, fallopian tubes, appendix and omentum.  The cysts didn't have thick mucus in them (the sign of pseudomyxoma peritonei), however the pattern of the cysts was in common with it.  So we are no closer to knowing really.  He did have to leave some cysts in me - they were by the liver and he isn't qualified to go into that area to remove them.  He said that it takes quite a while to get the results back because it is a complicated process to analyse everything.  I guess we will just have to wait.

Anyway, here is what happened this week:

Sunday
Sunday I got back home, it was fantastic to be home.  The journey back wasn't the most comfortable (mainly because I was wearing jeans and a belt) and I was glad when we finally got here, I had a huge smile on my face for the rest of the day.  My back did begin to ache big time though, which is what the anaesthetist said would happen.  Being elated about being out of hospital, I completely forgot about pain relief.  I went for a walk to see if I could ease the pain, no joy!  The sofa was uncomfortable (I could feel exactly where yesterday's epidural took place), the bar stools were uncomfortable, the kitchen chairs were uncomfortable.  I was wondering what to do with myself, when I finally realised that I hadn't taken any pain relief.  I loaded myself up: paracetamol, ibuprofen and the codeine the hospital gave me.  In half an hour I was fine again.  We had dinner: beef stew, green veg, potatoes and carrots, all very nice, but I realised that I have very little appetite and could only eat a very small portion.

Mum said that she couldn't eat after her hysterectomy either, so I was encouraged that it was normal.  I can feel all fluids and solids going down my side, it is very strange and a little concerning.

After dinner I was pretty much shot, Tom and I both went to bed at the same time.  I very much enjoyed being in my bed again - pure bliss.

Monday
I naively thought I could return back to normal life today.  We needed some veg, so me and Matt went to Booths in Kirkby Lonsdale to get some and some painkillers (hospital didn't provide any paracetamol or ibuprofen) and then to Ireby for soup.  By the time we got back I was completely exhausted.  I had to go and lie down almost immediately and didn't really recover for the rest of the day.

Just as I fell asleep the phone went - it was Dr Morgan from the surgery, she was hoping I was out of hospital and wanted to check on how it went and how I was.  She was lovely, very concerned, understanding, sensible etc.  She knows of two people who have had pseudomyxoma peritonei - one was a patient at an old practise, she lost touch so didn't know how it went with them and another is a family member, however, her diagnosis got down graded to something else and she is doing really well and is clear at the moment.  She has put on her notes that I can ask to speak to her personally via triage, and has said I can call at any time.

Matt, Mum and Dad were cooking the goose today, I had totally lost interest in anything by the time dinner was ready and managed just a tiny, tiny portion.  All I wanted to do was lie down.  I think everyone realised, as I got sent up to bed before everyone else had finished.  What can I say?  I overdid it!!!!!

Tuesday
After yesterday I realised that I really do have to take it very very very very easy if I am to last the day.  After breakfast Kate turned up for a natter, which was nice.  I then lay down for an hour or so, before Matt took me to Clapham for lunch.  We had soup, did a quick, short circuit of the village and then returned home so I could rest before Tom came home.  Then I got up, managed to make dinner, and think I stayed up until about 8pm.  A better day than yesterday.

Wednesday
Mum and Dad left to go home today.  They said that as I wasn't an invalid and Matt was looking after me well, it was time for them to go and for us to re-establish a routine that works.  We were all sorry to see them go, they did a stirling job keeping everything going whilst I was away.  Matt said that he doesn't know if he could have coped without them, so it was big hugs all round.

Caroline came round for a natter after they had left and then Matt took me to the Community Centre so we could post Leia's Japanese pressie.  Now, everyone who knows Ingleton will know that the Community Centre isn't that far from us and we went the field way (i.e. no up and down, just flat).  I got there fine, and was expecting a nice long sit down whilst Matt waited in line (there is always a queue on Post Office days).  Typical, there was no wait today, so I was back walking home in 5 mins. I was a little shaky when we got back and I had to go straight back to bed to lie down.  It took me 3 hours to recover!  Wow!

Tom had swimming this evening, I was hoping to go, but my body was telling me no so I stayed behind.  It was a shame, because he did so well, that he went up a class.  Fantastic.  However, that now means his swimming time is 7.15 - 7.45pm which means he's going to be more tired mid week, and I probably won't make next week either!  Never mind we were both very proud of him.

Thursday
Thursday morning Anne and Janine came round in the morning which was lovely, nattering about nothing in particular.  We sent Matt out for the day on his motorbike - he needed a blast to help get his head clear again and also the weather was magnificent, if I couldn't join him outside in it - I couldn't possibly stop him enjoying it - you never know how long it will last!  Once the girls had gone, I walked over to the Newsagents to pay the papers.  A huge distance for me and I was struggling a little on the home straight, but I did it ok.

The afternoon was then spent in bed, and receiving parcels.  OMG - I received so many cards and parcels today - I was certainly feeling the love.  One in particular from Helen Singer, touched me - she sent me chocs and loads of lotions and potions for the body and a lovely card.  It all got too much and I broke down in tears.  Of course that is exactly when Matt decided to call me to let me know how he was getting on.  I think he got a shock, but after I explained they were happy tears he was fine!

Oh I got my appointment card through from the hospital today - I don't get to see Nick Wood again until 5th May.  I was surprised as he told me 2 weeks and this is 3 weeks!  I guess it's not a problem long term, but it seems like the wait to find out whether it is cancer or not is going on and on and on.  I can't plan anything until I know - Lily Pad Bakery is asleep at the moment and will have to stay so.  I know it's only another week, but it will be a long week, I just want the diagnosis over and done with.  What will be will be, but please tell me what it is!

Pat & Bob came round in the afternoon to say hi.  Tom got picked up from school by Caroline for Fred's party.  I was hoping to go with Matt to pick him up, but by 6pm I was flagging again and as I am now listening to my body, I decided it would be a mistake, so stayed at home.

Friday
Today was milestone day.  I was determined to do the school run in the afternoon.  Mandy came round in the morning with 4 huge chocolate cakes.  She said that both Anne and Janine had seen her and told her they were worried about me because I'm not eating.  Not sure huge chocolate cakes are the answer, but Matt and Tom will certainly enjoy them.  It was good to see her and we were able to swap our horror stories - we can certainly wrack them up between the two of us.  She's a little worried that I'm not crying enough.  She said that she cried the whole time, ended up in therapy etc etc, took 3 years to get over it.  She wasn't expecting that of me, but says I should be crying more than I am?  I guess I just don't do crying about me - I quite happily cry about other people, just not very good about doing it about me.  Plus I STILL don't have a diagnosis so don't really have anything to cry for?

Anyway, after she left I took to my bed to rest in time for the school run.  Typical, I was almost asleep when it came to 3pm, but I was determined.  I wrapped up warm and we left home just after 3pm for the walk down.  I think I managed to walk a bit faster today, so we got to the school quite early.  We had a sit down on the bench before heading up to the playground, where once again I sat down to recover.  People were pleased to see me, especially Tom who kept telling me how proud he was of me.  It's like our roles have been reversed - he's the adult and I'm a toddler who needs praise and encouragement and a nap at some point during the day!

Anyway it was a good end to the week - things are looking up, I am getting stronger and fitter.

Friday, 22 April 2016

Hospital Stay

Right then, time to write about my stay in hospital.  It won't be a pleasant read because it wasn't a pleasant time, so if you are squeamish etc then I would advise skipping over this.  I need to write it all down to help me see what I have been through and what I have achieved for those inevitable down days I will have at some point and to try to empty my head of it all so I can maybe get some sleep!

Monday
We got up ridiculously early as we had to be at Preston Hospital for 7.30.  I had a shower and said goodbye to Mum and Dad and Tom (who was already up - jet lag!).  We didn't have a good night's sleep, but neither of us expected us to do so, who would with a major operation just round the corner and all the uncertainties it brings with it.

We got to Preston ridiculously early: of course, there was no traffic on the road and we had allowed for road works etc just in case.  We then sat in the car in the car park for a while.  Matt wanted to get to the ward early, but I didn't, I had no wish to be there an extra minute than needed.  We were a little unsure as what to expect when we got there.  I had read a leaflet that said that you get 'dropped off' no waiting for the operation, when I queried this with the Specialist Nurse, they said that Matt would probably be able to see me until it was time for the op.  It turned out she was wrong and the leaflet was right.  We arrived, the nurse told us to say our goodbyes and then Matt was set out.  He was so flustered that he couldn't find the door out, and ended up saying goodbye again as he walked past me a second time trying to find the way out.

I was taken into a small ward and told to change into a hospital robe and my dressing gown, which I did.  I then had to do a sample as I had to have a pregnancy test before surgery could happen.  I was so flustered that I didn't quite understand what she meant and wondered if I had to do the sample in the cubicle.  I had to ask her in the end, and got told there was a toilet I could use!  How embarrassing!

From now on my memory is pretty hazy of this day, but at some stage I saw Nick Wood, who told me that he had heard from The Christie but they hadn't come back with much useful information as they hadn't received any of my scans!  He didn't know why they hadn't received my scans and was pretty ashamed of the fact (they have had them for over 4 weeks).  Anyway that was that, he was going to do my op.  I asked him about the +/- on the letter from him around the omentum (stomach flap thing), he said he was definitely going to take everything out: womb, cervix, fallopian tubes, ovaries, appendix and omentum, he actually said to me that my omentum is diseased and needs out.  First time the word disease had been used around me.

A nurse came in to settle me on the bed and gave me some relaxant (temazepan?) as I had to wait for a lady in front of me to have her small op first.  I don't remember waiting at all, so I guess the relaxant helped.  I think they came for me just before 10.30.

I think this is when I saw the anaesthetist for the first time, a lady who was very reassuring.  She explained that she would put an epidural in first and then the general.  She kept saying not to worry and that she would look after me, which helped.

I also at some time saw a junior Dr who came in to see me to explain that he would be present during the operation, would it be ok for him to put my catheter in, and then a general discussion about my condition and why I went to the Drs in the first place, medical history etc.

I had the epidural, I bent over whilst my spine was fingured, a local anaesthetic shot in and then an epidural needle put in.  I didn't feel a thing, but didn't feel any numbness either, not sure if I was supposed to but my feet, tummy etc all felt the same?  I don't remember anyone saying they were about to administer the general anaesthetic but I guess they did - I don't remember much else from before the op.

I remember waking up from the op though - I was in incredible pain.  I felt as if someone had carved my stomach in half (funny that!).   I can remember a nurse telling me to roll on my side which I did with a lot of difficulty and pain and her putting a cold wipe on my back and asking me if I could feel if it was cold or not.  Everywhere she put the wipe I could feel it was cold.  This apparently shouldn't happen.  She then said to me she could give me some paracetamol - I was beside myself!  Then around the corner came the anaesthetist with a huge syringe of morphine which she injected straight into my hand - she said that the operation area was huge which was why I was experiencing so much pain!  Anyway the pain stopped so that was good.  I was then hooked up to various drips including a morphine one which I could administer myself by pressing a button, I could have a shot every 5 mins if needed.  I can remember hitting the button a lot that first day.

I am pretty sure that Nick Wood came by after I was on the ward to tell me how the operation went, but I have no idea what he said to me.  I have a flash back of him telling me that it was Pseudomyxoma Peritonei almost with a grin, but I have a feeling it is a false memory from the drugs rather than reality.

I can remember having some dinner that day too.  I was surprised that the food didn't look too bad, but I didn't eat any because I fell asleep whilst trying to feed myself and when I woke up it was all cold.

Matt came to see me for visiting hours (6-8).  He had had a pretty rough day.  I don't remember the visit, but he tells me that I was awake, but very drowsy.  I certainly don't remember anything else from the day.

Tuesday
Tuesday I don't really remember anything from Tuesday, except that Tuesday was the day that I started to be sick.  I didn't have an appetite, but was told that I needed to eat something so I tried.  I had half a yoghurt and a bite of a banana and 5 minutes later was spewing into a sick bucket.  Not great - especially when you have a cut down the middle of your stomach - it hurt like hell so swear words were used!!!  Nurses left me to it, I thought they were ignoring me as they went round the ward washing everyone else seeing to everyone else's needs but with hindsight I now realise at that point I was probably the sickest patient on the ward at that time so they left me to last for that reason.  Just as they came in with a bowl of hot water and got me to the edge of the bed (no mean feat with loads of tubes and bags etc hanging off me) ready to get on a chair to give me a chance to wash (there was blood everywhere as I had a catheter in so no pads) a whole load of Drs I didn't know came in.  They paraded in, discussed me amongst themselves, using lots of medical terms and then asked me if I had any questions.  I lost it at that moment, eyes filled up with tears, I didn't even know what they were talking about, didn't know who they were, was completely disorientated with the drugs and just said I couldn't think of anything.  They then left, the nurses got me to the chair, I came over really hot and sweaty, so one ran off to get me a fan whilst the other gave me some wipes and left me to it as I cried and felt sorry for myself.  I was completely overwhelmed and needed a hug from someone to tell me it was going to be ok, but there was no one to give me one so I felt extra special sorry for myself.  Not a good place.

I did manage to get myself reasonably clean with the water.  The nurses came back and got me back into bed.  We were served lunch, once again I had about 2 mouthfuls and then 5 minutes later everything came back up - so once again much pain, swearing and the curtains were drawn around me to leave me to it.

I don't remember much else from that day.  Matt brought Tom in to see me after school (between official visiting hours - we were allowed as we live sooooooo far from Preston).  I wasn't 100% sure it was a good idea, but Matt really wanted Tom to see me.  At the time I had all my tubes still in and an oxygen tube up my nose (which I hated).  I sent Matt a photo of me to show Tom to prepare him for it.  When he arrived, I could see that he didn't know what to think, he couldn't hug me so I gave him a firm handshake.  His face wobbled, so I took the oxygen tube off, which helped (luckily the nursing staff didn't notice, I got told off quite a few times for taking it off and not replacing it!).  He was ok in the end, very careful not to knock the hospital bed, very careful with me. Such a sweetie, I felt sorry for him.  He managed to tell me what he had been up to at school, we had a good conversation in the end.  After about an hour,  they left for tea in Booths whilst I went back into a drugged sleep.

Wednesday
Wednesday is also a blur and probably my darkest day.  I was beginning to wonder how much longer I could cope feeling like this.  Nothing seemed to be getting better, I couldn't see a light at all, I was very miserable.  I still had everything connected up to me and was still quite poorly.  The nurses didn't even try to clean me today - so I was still in my operation gown, still hadn't done my teeth even, my hair was matted beyond recognition.  I once again tried to have breakfast - yoghurt and a banana, had a spoonful of yoghurt and 5 mins later spewed it up with more swearing.  The curtains were drawn around me and I was left to my misery.  I lay back down on my bed and clicked on more morphine to take me to a nicer place.  I didn't even try to eat lunch, but the smell of other people's lunches around me was enough to get me going again.  I didn't have anything in my stomach so this time I brought up bile - which meant even deeper heaving than regular food - which of course meant even more pain - oh joy!

Matt came to see me at 2.30 visiting time, but I wasn't really up for much conversation, I couldn't keep my eyes open and in the end Matt held my hand whilst I fell asleep, it was just what I needed, some comfort whilst spinning in and out of consciousness.

After Matt left tea was served, I had a mouthful or two and once again spewed everything up.  I was retched.  Mum and Dad came to visit in the evening, I couldn't hold a conversation with them, in the end, Mum stroked my hand whilst I went to sleep - I felt like I was a 6 year old girl again, desperately needing comfort from my Mum - the magic worked, I relaxed and felt lovely.  Mum kept it pretty much together as well - well done Mum, but you touched me big time in that moment, I was 42 going on 4!

Thursday
So, I tried not to use so much morphine today as the Drs were saying that it was probably the morphine making me so sick.  I did really well, hardly pressing the button at all during the night.    However, this also meant that I didn't sleep so well.   I woke up with a start around 2am completely disorientated.  I had NO IDEA where I was.  All I could see around me were green curtains and white ceiling tiles.  I was by myself, I couldn't hear anyone else, Matt wasn't there, Tom wasn't there - I am never without either of them.  I was laying on my back, and attached to something I couldn't see.  It took me a long while to work out where I was, initially I thought I was in some sort of a mental institution!  I didn't get back to sleep again!!!!!!!!  Also the alarms on the morphine drip kept going off - these are really loud really annoying alarms, and the nurses don't come to turn them off straight away - I had a headache before too long.  In the end they had to get an anaesthetist up to sort out the drip.  She ripped it all off and started with a new one as she couldn't stop it alarming either.  The whole ward must have been kept awake by it.

Breakfast was same old same old, half a pot of yoghurt and 5 mins later it all came back again.  Then I had someone from the pain team come to see me.  She said that I should be on intravenous painkillers and anti-sickness drugs and come off the morphine, so the nurses acted on that.  Then a whole load of Junior Drs came - the lead one put me on nil by mouth - only water nothing else as she thought that my tummy had stopped working due to surgery.    I wasn't going to complain as I didn't want to eat anything anyway.

In the morning I developed a really really bad headache.  It started at the back of my head and gradually moved up and over to my eyes.  It was debilitating.  Some nurses had come with a bowl of water ready to sit me up in a chair and give me a wash.  They left me with my legs over the side of the bed whilst they went to get something, I couldn't stand being sat up and slunk back down again on the bed.  So no wash for me, I was still in my operation gown and still hadn't done my teeth at this point.  They came back and I said I just couldn't sit up.

Nick Wood then came to see me, he felt my tummy and said it was lovely and soft and thought it was the drugs making me sick, not my tummy.  He immediately reversed what the other Dr said and told me to eat for hunger.  I also got permission to take the oxygen off at last (I realised that if I breathed hard whilst my obs were being done, my oxygen saturation levels would go up - so I did that a couple of times and got told I was ok - fab, at last something was going my way).  I was then also taken off the Morphine and epidural.  Fantastic, for the first time I could move my body and lie how I wanted to lie not how I was being forced to lie by all the tubes etc.  I told him about my headache and he immediately diagnosed an epidural puncture.  Basically how he explained it to me was that the anaesthetist whilst putting in my epidural punctured one membrane too many and as a result my spinal fluid was leaking into my brain, giving me a huge headache.  It will go away after a couple of days untreated, but there is a procedure called a blood blot which can be performed which can relieve it: you have a second epidural, and then blood is taken from your arm and injected into the epidural space, this forms a clot and heals up the space from which the spinal fluid is leaking.  The only way to relieve it is to lie flat on your back.  He said he would let the anaesthetists know and they would come to see me about whether I would need the procedure.

Matt came to see me at visiting time and it was whilst he was there that an anaesthetist came to see me.  He basically said nothing would happen today as it was too late now, but to drink plenty of caffeine as that can help with headaches.  I couldn't believe my ears, nor could Matt, but he went straight to the hospital shop and bought me two bottles of coke: one full fat and one diet.  (He bought full fat because I hadn't kept anything down for so long he thought I needed the sugars!)

He then went home.  I got served dinner - tuna salad.  A nurse came in and gave me intravenous sickness relief but said it would take 30 mins to take effect, so I waited.  Janine came to visit this evening which was lovely.  She was able to get a brush through my matted hair so I could feel some way normal again and we were able to talk normal things.  Was a pain that I had to lie flat, she had brought me magazines etc, but I couldn't read them with the headache.  Anyway, I managed to eat a couple of pieces of cucumber, 2 new potatoes, some tuna and lettuce whilst she was with me and it stayed inside.  Yahoooooo!  She was my lucky charm, it was so nice not to be sick again.

By the time she left I was feeling 100 x better, much more positive in myself, so many progressive things had happened, that I felt I had turned a corner and was on my way to recovery at last!

Friday
Wow!  I had some vivid dreams last night.  I now understand how the Beatles did their lyrics and cartoons during their psychedelic phase.  I was in lots of strange places, one a bar with lots of fat naked men on the floor which you walked on?  Me and Matt were in a slo-mo tumble in a bar, going through pains of glass, and lots and lots of strange and weird stuff.  The nurse said it was the withdrawal from morphine - wow, just wow!  They weren't scary, just very trippy and psycadellic.  If I could draw, then I would have done so to remember them better!

So, today I still had the headache, this morning I was a shaking, trembling, nauseous mess.  I managed half a pot of yoghurt and it stayed in, but everytime I sat up my head hurt like hell.  A nurse popped by and asked if I would like a shower.  Of course, I was desperate for one, I was still in my hospital gown, but I knew I would have to sit up and it would be agony for my head.  I weighed things up and figured that a shower, clean hair etc would make me feel better and would be worth the pain of standing up.  So I said yes.  Oh my god it was painful.  The nurse had to help me because I was shaking so much.  Basically we ripped the hospital gown and stockings off, I sat down on a stall naked and she showered me.  I used shower gel on my hair and body - tried to get the worse of the blood off and then begged for her to finish and dry me down.  I put on one of my new nighties and stumbled back to my bed for blessed relief of the headache.  It was a very very painful, undignified shower, but it was worth it as I felt so so so much better afterwards.

As the morning went on I got more and more upset by my headache - finding a comfortable position to put my head and aching shoulders was getting harder and harder.  A nurse saw me struggling and asked if I wanted more painkiller, I was at my maxim for pain and said yes.  She went away and came back with an injection which she put in my arm.  10 minutes later I was in relief - I couldn't believe it I could feel where the headache had been, but it wasn't hurting - it was lovely.

Of course 30 mins later an anaesthetist came to see me about the headache, and I was sitting up and smiling.  She was surprised.  I explained what had happened, she said that if it can be managed by painkillers, then I wouldn't need the blood patch and anyway, it should go away of its own accord after about 4 days.  She said she would leave me until 2pm and see how I was then, but to let the nurse know if it came back.  The problem I kept being told is that it is very unusual to get an epidural puncture from a hysterectomy epidural, normally it is the pregnant population who get it, I got the feeling that they either they didn't believe me or they didn't want to do it as it wasn't a 'normal' procedure for them.  I spent the day with my curtains drawn to keep the sunlight off me as I had gone photophobic!

After lunch the student Healthcare Assistant came in to take my catheter out - it was held in place by a balloon - I did wonder!  The nurse almost didn't take it out as I said my headache made it so difficult to stand upright, but I assured her I could take the pain for the pleasure of being a normal human being when it comes to toilet usage.  It was a good moment, my first private wee!

Mum and Dad came to see me at first visiting hours, they both said how much better I looked.  To be honest, I felt fine, except for the headache.  The anaesthetist came to see me again when Mum and Dad were round and because I was slightly elevated and talking to them happily, she said she wouldn't be doing the blood patch as it looked like everything was mending itself.  I was in agreement with her, my head didn't hurt as much as it had been, and I was beginning to think that it would clear on its own.

Looking better
Matt and Tom turned up for a visit in the evening.  Tom looked happier, he said I was a better colour and we managed a nice photo together for FB.  I managed to eat a whole corn beef sandwich for dinner - not a gastro high, but a milestone for me - didn't feel at all sick or bloated, maybe the appetite is coming back.

Oh this evening, I self injected for the first time.  I knew that I would have to self inject on my return home - (blood thinning injections for 28 days after the op).  The nurse had been doing them for me in the evening.  Last night I asked her to show me how to do them as I knew I would have to learn, so she showed me.  Tonight she handed me the syringe and told me to do it.  Basically I have to grab a lump of fat near my stomach and direct the needle in at 90 degrees, stab through my skin down to the shaft and plunge.  The hardest bit was knowing how much force was needed to get the needle to pierce the skin, but once I got up the courage, it wasn't so bad.  It stings, but not as much as when the nurse does it.  I guess it is a small price to pay for freedom from the hospital.

Oh in the night I got moved from my windowless cubicle to an end cubicle with windows.  The light in the end cubicle didn't work and the Polish lady in it who had had an gynae op, had contracted pneumonia in the middle of the night, loads of people had to come to see her and sort her out, but no-one could see anything as her light wasn't working - the easiest person to switch her with was me as the others in the ward were dementia patients and would have got even more disorientated if they got moved.  I felt awful as my 'stuff' was everywhere - because I hadn't been able to sit up everything I needed had to be in touching distance so it took them a while to pack me up and move me.


Saturday
Saturday I woke up a shaking, nauseous, wreck again, the headache was bad, again, we were back to square one again!  Not a good place to be.  I couldn't eat much for breakfast as I felt awful and at one point I was even crying in pain - desperately trying to find a position to put my head where I could ease the pain.  Nick Wood came in to do his rounds, took one look at me and said that he would arrange a blood blot for me today because I couldn't stay in this state any longer.  Also, the headache was the only thing keeping me in hospital now, so it needed clearing up.  I get the impression he is the head honcho in the department so once he makes a decision it gets followed through.  I was pleased to hear him say that, I was in a lot of pain and was very close to asking the nurse for another pain relieving injection but was worried that an anaethestist would arrive shortly afterwards and refuse to do it again because i was in relief, so I soldered through and finally found a comfortable spot to lie in.  A healthcare assistant came by to ask if I wanted a shower, I refused, hoping that if I had a blood blot then I would be able to have one by myself later in the day, otherwise it would have to be another undignified spray water at me whilst shaking uncontrollably with pain experience.

An anaesthetist came up to see me, he took me through all the risks, told me that there was only 60% chance it would work but then told me the effect was instantaneous.  As soon as I heard that I was desperate to have the procedure.  He picked up on this and agreed, that I was a candidate for it and although it is very very unusual to have to perform this on an hysterectomy patient, he would.  Only problem is that you need two anaesthetists to perform the operation, so he wasn't sure when it would happen, but my name would be down for it today sometime.  I felt so relieved that something was going to happen I was truly fed up with the headache now.

Lunch came and went, it was tomato pasta which was fine, but trying to eat something like that whilst lying flat on your back is almost impossible without help, and I refused to be helped like the dementia patients next to me - that would have been the worse. A nurse had offered me an invalid's beaker earlier in the day so I could drink better and I refused, she smiled as she knew where I was coming from - I was not going to slip that far, I couldn't slip that far, as long as I had a straw, I had a way to get fluid into me.  When the Healthcare Assistant asked me how much lunch I had ate, I lied and said a lot, she checked and told me off!  I got caught!  Oops.  Anyway she didn't make me eat anymore and let it go.

About an hour before visiting time the anaesthetist who had seen me earlier came up to collect me - they were finally going to do it.  The procedure was classed as another operation, so I had to sign my life away on a consent form again - all whilst lying flat on my back!  The last question - "is there a chance I could be pregnant" made me laugh!  Really?!  I'm on a gynae ward, with a huge scar down my stomach, what did they think I had had done?!    I was worried that I would have to walk to the place where they were going to perform it, but they took me in my bed which was good.  The nurses looked really confused as I left - apparently no-one had told them I was going to have the procedure performed - I think Nick Wood went above everyone to arrange it!

They took me to an anaesthetist room which was a bit cramped.  The more senior anaesthetist got me into position (lying on my side on the bed) and wrote all over my back, working out the best place to put the new epidural in.  He then went off to scrub up, came back and started painting me iodine. He painted my back in it and then got hold of one of my arms and covered it in iodine, again and again - he wanted to be absolutely sure that it was sterile.  The junior guy then started doing the epidural - injecting me with local anaesthetic and then putting in the epidural needle.  He then waited for the other guy to get some blood from my arm.  He had trouble getting the blood. He had found a vein, but apparently the blood wasn't flowing quickly enough and he was whinging that the blood would clot in his syringe rather than in my back and that I hadn't drunk enough recently (maybe I should have gone for the invalid's beaker after all!).  He gave up and said he would go for an artery instead, by this time I didn't care, he could have gone for my neck and I wouldn't have minded.  He went for an artery on my wrist, so more local anaesthetic and then 2 syringes of blood which he passed to the guy stood by my back.  He quickly injected them into the epidural space - the space was obviously big as both syringes filled the space.  I was then put on my back and told to stay in that position for an hour. The two anaesthetists then left quickly for other jobs and I was returned to my ward.  Matt, Tom, Mum & Dad were waiting for me as it was visiting hour.   I spent an hour speaking to them lying flat on my back and then slowly, slowly started getting up.  First using the bed, then swinging my legs over, then standing and finally walking.  I had a huge grin on my face, I wasn't in pain.  It was AMAZING, I was in seventh heaven.  The anaesthetist came by to see me and saw me sitting up with a huge grin on my face - that was all he needed to know.  I was gushing in how amazing I was feeling, and how amazing he was for curing me.  Sitting up has never felt so good.

Family visit
We then thought that maybe I would be able to get out of hospital that evening.  The anaesthetist wanted me there until 6.30 and then he was happy for me to leave.  We asked the nurse, but unfortunately she didn't have any of my meds ready which meant that if I went home, I would have to return tomorrow for the meds. We were humming and harring for a while, but decided the best thing in the end was for me to stay in another night and be released tomorrow.  Oh hum, not the worse thing in the world.  I said goodbye to Matt, Tom, Mum and Dad and then asked for permission for a private shower which I got.  Oh my word, it was just glorious.  I think I stayed in there for a good 30 mins, standing almost straight, and enjoying the luxury of no headache, whilst shampooing my hair with shampoo and washing my body with shower gel, taking a lot of time about it.  It is the simple things that really help.

The rest of the evening was spent doing all those things I haven't been able to do for the week: sitting in my chair, reading my book, doing puzzles, lots of Facebook and messaging and I got to eat my dinner sitting up (cheese salad - not the best dinner in the world, but I ate more at this sitting than I have in ages).

I went to sleep a happy girl - just one more day in this place.

Sunday
Wow, Sunday took an age.  I did get released, but boy did it take a while.  I was feeling absolutely fine, no headache so I had a huge smile on my face.  I made a point of being completely independent with everything today, didn't ask to do anything, but just did it - going to the loo, having another wonderful wonderful shower and then I got dressed into my regular clothes (the clothes I wore when I walked into hospital).  Unfortunately they were jeans, but I was hell bent on making a statement to everyone - I was ready to leave, ready for normal life and being dressed in normal clothes was a huge hint to everyone one - I was not staying another day!!!

Tom's thoughts of the day.
I packed up and started twiddling my thumbs, I asked a number of times if my prescription had gone to pharmacy and what time I would likely be released.  No time was forthcoming.  I still had my dressing on and cannulas in my hands.  I was going to get frustrated today, I didn't belong in this ward anymore.

On the up side - Matt send me this little bit of prose from Tom.  This caused a lump in my throat - what a sweetie he is!

I was in a ward with 6 beds.  I was the youngest on the ward by about 30 years - apparently Gynae problems normally appear later on in life.  There were 3 of us with Gynae problems: Jean a lady from Blackpool who was an invalid anyway, she had cancer but because she's a invalid already and over 70, an operation was a huge risk, but if she didn't have it then she would die from it.  She decided to go for it and was going to have it on Monday.  She was ignorant, only thought of herself and would should out randomly during the night for her husband and then moan when other dementia patients did the same.  I didn't warm to her.  The other lady with Gynae problems was a Polish lady who didn't have much English understanding at all which made for some interesting conversations on the ward.  She had had her womb removed and a large cyst.  She was probably a nice person, but as her conversational English was literally the same as my conversational Japanese there was no conversation to be had.  She had complications with pneumonia but was looking much better on Sunday and was off all nebulisers.  Out of the other 3 ladies on the ward, one, Margaret I think was putting it on!  I think she was in her late 60's / early 70's.  She seemed to have a different complaint everyday!  She loved it when she was given a procedure - when she had an enema (because she was blocked up) she was singing to herself and very animated throughout the procedure - shouting to the nurses, etc etc, calling her husband to describe in graphic detail what had 'come out' but then once that was over and there were no more procedures, she would lie in her bed looking ill.  I think she liked the attention. A Dr came to see her once, he didn't sound particularly convinced by her - suggested she went home and attended out patients clinic, which she didn't like.  As I said everyday she came up with a new complaint so that she couldn't be discharged.  The nurses were very patient with her - I wouldn't have been!  That leaves Catherine - a lady in her 80s who had come in after a fall.  She was a lovely gentle lady, called Tom a pipsqueak!  I think she had lost her joie de vivre.  She was in hospital for her birthday - the nurses sang to her, gave her some daffs and chocolate cake. Her whole family came in (she has 4 sons) complete with wives and grandchildren etc, completely wore her out and then didn't come and visit again!  She had regular visits from chaplains though (who I think were older than her!)  Last but not least was Joyce, who was also in her 80's.  She had also had a fall and was a very stubborn old lady and very disorientated (not a great combination).  She was constantly wetting and pooing the bed so constantly had to be changed.  Everytime she would get very upset shouting: Please no, please no, PLEASE NO and then scream as the nurses changed the sheets.  I think it took at least 3 of them to do it each time.  This was ok during the day, but it happened in the night too.  She came across as a sweet old lady the rest of the time, but she was always shouting out for her husband Alan, and looking for shoes: "Has anyone seen my shoes, I need some shoes, have you got some shoes you can give me etc" and having random conversations with herself.  She was not in a good place, and I have no idea what could be done for her.  She refused help from Physiotherapy and Occupational Therapy, she didn't have a visit from the Dr the whole time I was there. I guess she is a stat - very sad - I wonder where she will end up?

My new tummy
Anyway, as you can see, there was no one there with whom I could make friends.  I spent the whole of Sunday in my chair listening to music, colouring in and wishing the time away.  A nurse did come up and sort my dressing out.  She took my dressing off and undid 4 pressure stitches.  My tummy sure looks different.  I thought he was going to go through my belly button, but he went around my belly button.  The wound goes from my pubic area to almost my breast bone, certainly longer than he said it would be!  It isn't pretty, but we will see how it heals I guess.  I've never been one for wearing a bikini so it's not a problem.

I had lunch, it was horrible.  It was supposed to be vegetarian moussaka but it consisted of potato and tomatoes?  I couldn't stomach it and anyway, I was going home to home cooking in the afternoon so figured I could leave it for now.

Very happy to be home
By now it was almost visiting time, Matt and Tom had been waiting around hoping for an early call, but I had resigned myself to a 2.30/3.00 release.  It was nice when Matt and Tom arrived, at least I had someone normal to speak to.  At 3pm a nurse I hadn't seen before arrived with some medical stuff and a bag of goodies.  She took my cannulas out (hurray!).  The big one had twisted round and she said would leave a bruise (she was right) the other one was ok.  She then went through my meds: codeine painkillers,  anti sickness tablets, and lots of injections.  I signed where I needed to sign and then we left the building.  Oh my, I was so so so so so so so happy.  Matt went to get the car, and I waited outside on smokers corner for him to come, it felt like an age (I hadn't stood for so long in over a week) but I was soon packed in and on our way home.

The journey home was fine, it was a little long and I was thankful to get back here.  I had to take my belt off my jeans half way through, but we did it, I was home and very very very very very very relieved to be out of that place.  Let's hope I never have to go back.

Friday, 8 April 2016

Last Day

Nice stroll amongst cherry trees and tulips
So today was our last day.  It has flown by, but when we think about some of the early days we had, they seem over a month ago!

We didn't have much planned for the day, the morning was spent doing last minute laundry and packing.  We had done well, we came with 2 bags and we are leaving with 3.  Considering we are allowed 2 bags each, I think we have been very conservative with our shopping.

Fountain display at Canal City
We then went out for a walk as it was a lovely warm and sunny day.  We headed to a covered shopping arcade in the hope to find Tom some last minute jimbeis (not successful) but we did find him another Japanese t-shirt so that was good.  We have been struggling to find clothes to fit Tom - he is somewhere between children's sizes and adults sizes (mad isn't it).  Today we found a shop that sold adults' T-shirts in XS and they aren't too big for him.  Next time we come he will definitely be in adults clothes.

We then went searching for lunch.  Somehow we got ourselves to a place where we couldn't find many restaurants and the ones we could find were a little on the expensive side.  Finally we found a curry restaurant so went in - curry is always good here.


Final okonomiyaki
We walked along a canal back to Canal City shopping centre (where we found a whole floor devoted to ramen restaurants - bugger!) did a little more shopping and browsing and then walked back home for showers, baths and a rest.

Hakata station by night
We went back to Hakata Station for our last dinner.  First stop though, Daiso for a last shop.  Dinner  was okonomiyaki again - we all were in agreement that the okonomiyaki place, Fukiya, in the bus terminal at the station was our favourite restaurant of the holiday.  We were recognised as soon as we entered and were able to sit at the counter watching the cook.

Then a quick stroll back to the apartment ready to finish the packing for our early start tomorrow - we need to be at the station for the first train of the day: 5.50 to get the first flight out.  See you on the other side...

Thursday, 7 April 2016

Kumamoto Castle

Today was the last day of our rail passes - boo hoo!  It was also the worst weather day of the holiday so far with rain, wind and thick grey gloom.  However, it wasn't cold so we dried off quickly every time it stopped raining, we got a good soaking a number of times.

Yakiniku rice burger - yum
After a konbini (convenience store) breakfast (various buns) which we had at home whilst waiting for the washing machine to finish, we headed to Hakata Station to get the Shinkansen to Kumamoto.  We got the slower train as we had scrapbooking to catch up on and the Shinkansen is the best place to do it.

Kumamoto Castle
We got to Kumamoto just in time for lunch.  Lunch today was at Mos Burger - Matt has been dying to have a Mos burger for while, but we haven't been in the right place at the right time until today.  Mos burger is a Japanese burger chain, but of course they have their own spin on it.  Tom had a prawn katsu burger, I had a burger with special sauce and Matt had a yakiniku rice burger (rice patties instead of bread, thinly sliced beef instead of a burger.  All was served with a sensible portion of chips and a couple of onion rings.  It was all good stuff, and Matt was very happy.

Nice tower
We then got the tram to Kumamoto Castle.  Wow, what a big castle it was too.  It had huge grounds, such a shame it was pelting it down with rain, we didn't really get to enjoy them.  However, the castle was open - you accessed it via a huge secret underground passage.  Unusually we didn't have to take our shoes off to enter the castle.  We looked around all the floors, but there wasn't really that much to see, they don't really go into exhibits / explaining castle life etc, maybe because they don't have many exhibits, the castle has burnt down a number of times in its history after all - why they continue to make them from wood when they know this is beyond me!  Anyway the best bit was the view from the top of the castle (there were about 6 floors, so it was quite a way up).  Even though it was raining and very grey, it was a good view.
There always has to be something Kawaii

We came down and then found another building that was open to the public. the Grand Hall.  Here we did have to take our shoes off, the whole place was covered in tatami mats and smelt wonderful.  It felt like it was only about 5 years old as it didn't show any signs of wear and tear, just beautiful furnishings.  The castle kitchen was in this building which was interesting as I don't think I've ever seen a kitchen in a Japanese castle before.  It was 2 trenches built down into the floor on which kettles and bowls were hung and behind it another room with some big urns in it for rice etc.  There were also some big rooms with sliding doors which acted as meeting rooms.  Some of them had beautifully painted sliding doors etc.

Once we were done in the Hall, the heavens opened again so we found shelter in a room full of vending machines and then walked back to the tram to return to the station.  We had our 3 o'clock doughnut in Mister Donut, then the customary look around Daiso before heading home.

Ornate paintings
Tom the Shogun
Good cheap food - even if someone's scowling
Tonight it was Matt's choice for dinner.  He did some research and took us to a gyoza restaurant not far from the station.  It was basically a Japanese greasy spoon.  There were only 2 things on the menu: chicken wings and gyoza.  We got an order of each, the chicken wings were cold and the gyoza fine, but we couldn't make a main meal of them.  Luckily we discovered there was an Ohsho next door (one of Matt's favourite restaurants from way back when) so we paid up and then got a table at Ohsho and had yet more gyoza, some fried rice, ebi tempura and veggies.  We were much happier.

We walked back via Hakata station to pick up a new suitcase from a luggage store (we have bought loads of stuff - as we always do) and then headed home for baths and bed.

Wednesday, 6 April 2016

Morning Walk and Curry

Today, we had planned to meet up with Joel and his children for a walk in the hills followed by an onsen.  However, the weather forecast didn't look good and he cancelled.  We then got in touch with Ben and asked him if he and his children wanted to meet up.  He said yes, and suggested a little hike followed by curry - perfect.
Swinging

We set off to Hakata station when suddenly Tom said 'Look Daddy, Dr Yellow!', we all looked up to see his nose disappear behind a building.  We then ran to Hakata Station and the shinkansen tracks in the hope to see him - we got there just after he departed - poo!  So near, yet so far!!!!!!!!!!!


Oh hum, we carried on with our day and got the bus to Sakurazaka where we met up with Ben, Louisa and Max.  We did a little hike in a park and ended up at a view point over the city which was nice.  Max who is 12, then decided he was too old to hanging out with us so returned home, however, Louisa and Tom seemed to get on well and had a good time together.
Panorama of Fukuoka

Curry
We came across some swings, so they played there and then we headed to the curry restaurant.  The restaurant was an Indian curry restaurant, not a Japanese curry restaurant.  We were curious to see what an Japanese Indian curry would be like.  I went for a medium vegetable curry (note the word curry not a rogan josh or dupiaza or tikka etc - none of those were on offer) with rice and naan.  The rice was Japanese rice, not basmalti and the curry was a very mild butter chicken sort of a sauce with some bits of vegetables in it - very nice but not what I would call Indian.  However, it came with a naan bread which was pure heaven - really good, freshly made proper naan bread which was so delicious that for the first time in ages I actually over ate because I couldn't leave a scrap!

Tom and Louisa

We then said our goodbyes to Ben and Louisa and headed back to Hakata to get a Shinkansen to Kokura - we stayed there for an hour and then got a Shinkansen back.  The Shinkansen we got back was no ordinary Shinkansen, but a 500 series that has been decked out in the livery of a well known manga cartoon called Eva to celebrate its 20 year anniversary.  It is a purple beauty.  There is only one, so we were very pleased to be in a position to see it and ride on it.  Oh and it had the usual play area that a 500 has, so we sat in that carriage so Tom could play.  A Japanese family took a liking to Tom and plied him with gifts - a sweet, then a chocolate, then a whole box of chocolates - he still works his magic!!!!!!
Tom and Eva

We then got a limited express to a city just outside Fukuoka called Tosu.  Why?  Well, Matt wanted to 'do' something in the prefecture of Saga as it is one of two prefectures he hasn't been to.  (The other being Okinawa).  There is literally nothing to do in Saga, but the nearest city is only 2 stops out of Hakata, so we went there, found a shopping centre, had tea and came home.  He was satisfied.  Tom and I were sceptical whether it counted or not?! IT DID! We also went shopping, remember!


Baseball

Sushi delivery!
After spending days travelling around Kyushu, on Tuesday we stayed in Fukuoka.  We had a nice easy morning, doing the chores (laundry, tidy up etc), catching up on Tom's scrapbook and reading and generally enjoying not rushing around.

We then headed to Yodobashi Camera for lunch - Tom's choice, so it was shinkansen sushi, however, this time the sushi wasn't delivered on a shinkansen, it was delivered by an F1 car instead.  Just as novel, and we probably all over-ate somewhat (my tummy seems to have settled down now - so no ill affects this time).

The washing up...
We then walked to a shop Matt had found for me: 'Kitchen Paradise'.  I am after a Japanese knife to cut my cakes with.  All my knives at home tend to crush the cake when I cut them.  If anyone makes a knife to combat this, the Japanese do, so I gave Matt the challenge of finding me one during this holiday.  He found this kitchen shop so we went along.  It was quite small, but the owner was incredibly helpful.  She knew exactly what we were after and instead of trying to sell me one of her limited supply, she called another specialist knife shop to check if they had any.  They did, and it was in walking distance, so she printed off a map for us and sent us on our way.  How kind.

We found the shop - it was a proper knife shop and they were waiting for us.  We have been sold what is called a Castella Knife which has a long, rounded and very flat blade which is supposed to be great at cutting sponge - especially when you heat it up with hot water.  The blades on offer went from £50 to £190.  I decided on the £50 one and am looking forward to testing it out when I can.  Tom got very excited, he really wants to make me a cake now so I can try it out.


Tsuyoshi Wada - the Hawks' starting pitcher
After that we found a coffee shop for tea and a bun before heading to a second hand camera shop where Matt found his dream lens at a much reduced price, so that was purchased too.  It was a good shopping day as Tom had also bought himself another Japanese train to add to his collection (this time a freight train).



We had a little look round the other shops in the area as we were now in Tenjin, the main shopping area of Fukuoka.  We were hoping to get Tom another jimbei but have so far drawn a blank, mainly we think because it isn't summer yet and they only come out then.  We weren't successful!
Enjoying the game.

Next on the agenda was to find a bus to Fukuoka Dome as we had tickets for the baseball game tonight.  The bus seemed to take an age to get there, but we got there with half an hour to spare and joined the throngs of supporters into the dome.  Wow!  It was huge and full of families - there were babes in arms, loads of toddlers, teenagers, those in their 20s right through to those in their 70s - it certainly is a night out for all ages.  The atmosphere was great.  We got Tom some baseball bat-shaped megaphones - most people had them, you bang them together to a beat to help create the atmosphere.

The 7th inning stretch
It was a great night out, we all really enjoyed ourselves.  We saw the local team (Soft Bank Hawks) vs The Marines (from Chiba) with 35,000 people in a stadium with a closed roof.  Matt had to explain most of what was going on to start of with, but we soon got to grips with it and got into the swing of things.  Towards the end I was even able to join in the chants.  The Hawks started off well, getting lots of strike outs and scoring 4 runs, but when they changed pitcher, the Marines scored 4 runs - we were most upset.  The game continued to be a draw until the end of the 9th inning.  They then went into extra innings, but as it was already 9.30 we left to get home (very efficient we walked out of the stadium and found a huge line of empty buses ready to take us straight to Hakata - brilliant).  We were glad we left when we did as after extra innings they were still 4:4 and the game was declared a draw.

Oh - we had our tea at the stadium - and it was mediocre! Tepid takoyaki and chicken bits with cold chips for 3,000 yen (including drinks).  So, pretty much the most expensive meal and worst meal!  Nice to know they can't do stadium food either.

AND, guess what, I took my new knife into the stadium.  When we went in our bags were searched - but for beer and wine, not super sharp knives!  Only in Japan!!!!!!!!!!!!

Monday, 4 April 2016

Beppu


Ridiculous lunch
Today we went for a day trip to Beppu.  Beppu produces the second largest amount of natural hot spring water in the world (number 1 being Yellowstone).  Of the 27,000 or so hot spring vents in Japan, more than 3,000 are in Beppu.  Unfortunately, it isn't on a Shinkansen line, so we had to slum it in the Sonic (a limited express train which has seats with Mickey Mouse ear-shaped head rests).  We made it in one piece (you'll be glad to hear) and walked into town in search of food.  We couldn't find any restaurants initially (very strange) but then found a shopping centre with a bakery in it so decided to eat there.  Matt ended up going for the biggest bun on display - a huge sausage in a roll thing.  Must have been 2 feet long. Greedy thing!!!!! We were also nabbed by a couple of old ladies while in the bakery. Tom got kawaii-ed as usual, and Matt had a good chat with them - they were very friendly.

We then wandered back to the railway station to get a bus to Kannawa - which is where lots of the hot spring resorts are.  I think we got the bus which went the most circuitous route possible, it took an absolute age to get there, but we did in the end.  

Washing before getting in the onsen
We actually ended up in the same spa that we visited 10 years ago: Hyotan Onsen.  We had good memories of it, so why not.  Also we can rent a lovely public bath there for very little money (we guess that competition is so fierce here, prices are kept down).  So, that is what we did.  All public onsens are segregated (with good reason, as you are naked in them) but it means we don't get any family onsen time.  Anyway, here a private onsen for an hour was £13, which was very reasonable.  We got an outdoor one for that too which is always a bonus.  We did the usual strip down and wash routine and then relaxed in the hot water, and it was hot (although not quite as hot as yesterday's foot bath, which was insanely hot!)  We also had a one man steam room which was very very hot and smelt of sulfur but was good for getting a good sweat on!
And relax
We enjoyed our time together, but in the end it was just too hot, and we were turning red, getting dizzy and thirsty so we got out and dressed and went in search of cold drinks.  Once refreshed, we decided to head into the public baths here as they have 8 different pools (on both sides - Matt checked after my earlier rant!) including one with waterfalls which you can stand under and be massaged by.

So, in we went again - this time Matt took Tom so I had time to myself.  Very nice it was too.  As I entered, a coach load of old Japanese ladies were leaving, so although the changing rooms were heaving, the baths were quite empty.  I had another wash and then spent some time being attacked by the waterfalls - they were harsh but nice, certainly shouldn't be complaining of a stiff neck tonight. 

I then hopped into the other pools - including a huge outdoor one set in rocks with a massive waterfall coming down.  It was very tranquil, and very relaxing.  As usual, I was the only white woman there (I don't think I have ever been in an onsen and not been the only white woman).  There were plenty of foreigners in Beppu, I guess they are more into visiting the sights rather than enjoying the hot water.
I met up with Matt and Tom in the communal area (after being towelled down by a Japanese lady who wanted to interact with me and help me - my hair was dripping water down my back and she was worried I would get my clothes wet if I didn't towel myself down properly!).  We then decided to find a couple of the 'Hells of Beppu'.  Apparently there are 8 hells in all - basically areas where the water is bubbling out of the ground in an interesting way / colour etc.
Lots of crocs

The first one we visited was home to some crocodiles.  We were expecting one or two crocodiles, so were quite surprised to find a tank with about 30 big ones in as well as other tanks with many more.  They aren't native to the area / Japan, but apparently the hot water agrees with them and they live long lives there. A second hell was just down the road - this time it was milky hot water coming out of the ground.  It all reminded me of Rotoroa in New Zealand - I wouldn't be surprised if the places are twinned, as it was so so similar.

At "Demon Mountain Hell"
As we were floppy and tired from our onsen we decided to head back to the station and get the train home.  We were expecting another long bus trip, but it was less than half the time of the previous one, which meant we got to the station in good time to pick up a doughnut each from Mr Donut to eat on the train home (in an attempt to revive ourselves).  It was an uneventful and peaceful trip home - I very nearly fell asleep.  Once back at Hakata, we had a tempura meal for dinner (my tummy seems to be behaving itself now) and then we walked back home.  It was much colder this evening than previous evenings, we may be getting colder weather coming our way.